Day -2

This is our last day of chemo!  He has done such a good job.

He has 4 IV lines, 2 into each broviac line, many oral medications, and 3 mouth washes 4 times a day.  He also gets an EKG each morning while on chemo.  That has been a challenge.  There are twelve leads they have to attach to his chest.  By the time they attach one, he's kicked of two more.  It took us over an hour yesterday.  At first he was sleepy, but he is getting more and more fussy.  He probably doesn't feel well.  It breaks my heart, I wish I knew how he felt, what to do, and that I could take it away from him.  Transplant is on Thursday, another step closer in our journey.

Shawn stayed over night in the hospital with Nathan on Saturday, and I went home with Isaac.  It was good for both of us.  Our friends were in town, and the boys had a blast.  We went to a park with fountains that come out of the ground to run in, then a huge one you can swim in.   I go home for dinner on Monday, Wednesday and Friday.  Last night when I was picked up Isaac sang the ABC song and Twinkle, Twinkle, Little Star to me . . . it was so cute!