Hope

We are still having lots of ups and downs.  The doctors may call this stable, but it doesn't seem very stable to me.  His bilirubin went up and now it is down slightly again.  He is still having issue with fluid that effects his weight, swelling and breathing.  We still have him on the "blow by" oxygen.  Because the chest Xray showed fluid in his lungs, Nathan had an echocardiogram.  It showed there is a thickening or possibly edema of the ventricle walls.  The thickening could be because of the fluid, or the fluid could be a result of his heart not working quite properly.  This is a change from the last echocardiogram he had done.


On a positive note, my mom had prayed last night that he would eat.  Later that night he breastfed for the first time in weeks!  It was such a sweet moment.  I was so thankful, and my heart was filled with joy.  The Lord continues to answer prayers.  This morning he ate another 2 oz. from a bottle.


I am trying to have hope.  Our hope is in the lord and not in medical statistics.  I get very anxious when the doctors tell me the statistics.  It's so hard to hear that the mortality rate for VOD is 40% - 50%.  So far it is good things have not gotten worse, in fact they are slightly better.  They did catch it early.


Be strong and take heart, all you who hope in the LORD.
Psalm 31:24



We wait in hope for the LORD; he is our help and our shield.
Psalm 33:20


Continue to pray for healing for his liver function, heart and respiratory function, and that he would continue to eat!  We are so thankful for everyone's prayers and support in this journey.  Through you God continues to encourage us and give us hope when we are discouraged.