Day -9 to transplant
It was a busy day yesterday and an emotional night. The prep work for the chemo made for a busy day yesterday. Anti-seizure medications were started to counteract one of the side effects of the chemo. There were lots of medicines, Dr. visits, and another dose of IVIG.
A feeding tube was inserted for the oral chemo, which was emotionally hard. He kept gagging, and wouldn't eat. It turned out we will have to use the IV form of the chemo drug. Our doctor is confident this does not pose any additional risks. They wanted to leave the feeding tube in, but he was so upset. After several emotional hours, I asked them to take it out. He has been taking the medications orally without throwing up so far. The journey starting tomorrow, knowing what his little body would have to go through, along with all of the unknowns was hard. Its so hard knowing we cant protect him from everything to come. There were tears. Thanks to the nurses, doctors and staff which are an incredible support.
We finally got to sleep after 1 am. The first chemo dose was at 5 am this morning. So we have now began the next step of our journey . . . Please pray for Nathan to have little side effects from the chemo and to stay infection free.
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