We will be released to my moms house in 9 days. It will be bittersweet to leave our extended family here at Cardinal Glennon. I am looking forward to my two boys being together, and to be able to be with Isaac again. It will be sad to leave our new friends here, and those who have helped us walk this journey.
We have been working feverishly to get the house ready for Nathan to come home. There wasn't any rest after my surgery, there was so much to get done. I just keep praying for God to protect my body becuase I have done everything I'm not supposed to. Its not much better at the hospital, Im not supposed to pick up more than 10 lbs. But I pick up Nathan alot.
Nathan still is not eating well at all. They are expressing concerns over his nutrition. They have even discussed letting him try PO, then putting a tube down to feed him the remaining milk he doesn't eat. I really don't want to have to do that. He still has an enlarged heart, and a thickening of the ventricle wall. We are hoping that will resolve over time. He is getting more hairy with each day. His eyebrows look like fizzy catepillars that will crawl off his face at any moment. The backs of his ears are so dark with hair, it reminds me of a werewolf. He has his beautiful long lashes back, and gorgeous blue eyes. He has a smile that melts everyone's hearts.
My little Isaac, he who laughs, is continuing to keep all of us laughing. He enjoyed the World Series, and even knows some of the players names. "Go Yaddie, hit two home runs." He loves to sing his own little songs. It is so sweet to hear. When Nathan comes homes, Isaac will be restricted on his activities and where he can go. This will present a huge challenge to my enegertic son. We have a new room for him at my moms house. We decorated it in Disney Cars, he is really enjoying it. The room is pretty large, and he loves to just run in it.
On the inside . . . .I'm kind of numb to everything right now. I really don't feel a whole lot of emotions . . . . good or bad. Even when I found out I had to stay in the hospital, or have surgery, I didnt really feel anything. I do get overwhelmed when I go home and see how much there is to do. I am starting to get sad as I have to say goodbye to my nurses one by one.
Pray for details with my job and our finances. Please also pray for the Lord to strengthen our marriage, and for Shawn and I to selflessly love one another. Please pray that Nathan will eat, and for continued healing. It has been a challenging journey, and there will be many more challenges to come. As the Lord promised us, we will see victory,
For the LORD your God is the one who goes with you to fight for you against your enemies to give you victory.”
Deuteronomy 20:4
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