Once again it has been a roller coaster. Sorry it has been so long since I posted. On Tuesday of last week, I got sick. I was actually out of the hospital by chance for an outing with my family. I made the decision to go home instead of back to the hospital, and it was a good thing I had. I did not go back to the hospital until Thursday morning.
He had changed so much, his face started to fill out. He still was throwing up, but he was happy. The doctors decided to turn down the rate of the feeding tube. He spiked a fever Friday night, but has been fine since. Then over the weekend, he started throwing up a lot more. His heart rate increased again, and his respiratory rate. We had to do blow by oxygen again. The monitor alarm was constantly going off again. My heart sunk. I was so anxious and worried, this is how his heart problem started last time. An Xray showed his heart was actually smaller. At first they thought it looked good, but later said when he threw up in his sleep and he might have gotten something in his lungs.
Saturday he was very agitated and uncomfortable. He started sneezing and coughing. The night was rough, I got so little sleep. I was up with him every one to two hours. I have to hold him most of the time. I have to wait for the nurse to have a free moment to even pump, go to the bathroom, much less eat. I tried to not leave him alone since he was throwing up so much. He'd be asleep in my arms, but the moment I laid him in the bed he'd wake up. My body was at its physical limit. Two nights in a row with such little sleep, on top of already being exhausted. I felt so weak. Thank god, Sunday was better and I did get a nap. Otherwise, I don't know how I would have done it. This has been pretty rough on my body. I have gallstones (which the surgery is scheduled for mid October to get my gall bladder taken out), UTI, and I think I have an ulcer now. I am thankful the lord continuously provides the strength I need for each day, even when I feel weak.
They stopped the continuous feed on Sunday. Since then he hasn't thrown up as much. We get a repeat echo cardiogram today. Please pray for his heart and lungs to heal, and for his digestive system to start functioning properly.
I was thankful to have spent some time with our friends that were in town this weekend. It was a much needed break. I am thankful for my brothers and sisters. God just keeps showing me that I need to continue to depend on him. He continues to use the people around me to minister and encourage me. Joy is a choice, and I try to choose to be joyful, even when it is hard, or I'm tired. The joy of the lord is not conditional or situational.
The righteous will rejoice in the LORD and take refuge in him; all the upright in heart will glory in him!
Psalm 64:10
Rejoice in the Lord always. I will say it again: Rejoice!
Philippians 4:4
A fun answer to prayers and how God know the desires of our hearts. I had wanted to take Isaac to Toy Story on Ice. We pass the sign on the way home from the hospital and he asks to go see Woody and Buzz. When I looked the tickets, they were too expensive. I happened to ask the hospital to see if they by chance had discount tickets. One of the organizations had tickets and I got 3 free tickets for this Saturday!! We have so much to be thankful for. He is good.
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