Catching up, Going Back Home! May 28, 2012 :
When we left St. Louis at the end of May, Nathan did not have his g tube yet. He basically hadn't gained any weight in over 6 months. His hemoglobin level was chronically low, and they were worried his kidneys were not making a hormone that stimulates our body to make red blood cells called EPO. He was diagnosed with stage 3 kidney failure, meaning his kidneys were working at less than 50%. He would eat on and off, but never more than about 25% of his caloric needs.
I know you are all very excited to know how he is doing now, and I promise I will get to that. To truly appreciate all the prayers God has answered I would like to walk you through our journey.
June 2012
His surgery for the g tube was scheduled for the week after we got back to Kansas City. However, Nathan got sick after being home only a few days with another line infection. We were admitted to our other new home, Childrens Mercy. Here he spent his first birthday. They made it very special. He got a birthday party from the staff and a cake. He even had the music therapist come play the guitar. We stayed in the hospital until the infection was clear and he had three seperate surgical procedures in one day. He got a new Hickman placed (central line), the g tube was placed, and he got a circumcision.
Fast forward to now. With Nathan walking, he falls a lot. He is unsteady on his feet. I am reminded of my walk with the Lord, and how I have stumbled so many times. I am clumsy and often fail. Time and time again, the Lord picks me back up. He does not grow tired and weary, even though I do so many times. He is patient, and helps my steps be steady.
The LORD guides our steps, and we never know where he will lead us.
Proverbs 20:24 ERV
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